Work: decotique.info@verizon.net

PO Box 157
Barrington, NJ 08007

In partnership with the Cystic Fibrosis Foundation, Decotique is committed to:
•Helping kids, young adults with CF through monetary donations toward continued research for advanced treatment and ultimate cure
•Providing informational resources to newly diagnosed families
•Helping to raise community awareness of CF by providing basic facts and statistics on genetic illnesses

ARE YOU UP FOR THE CHALLENGE?!! 23rd Annual Wawa Stair Climb - Save the Date!  Sunday, February 28, 2010, 8:00 am Registration, 9:00 am Stair Climb, Mellon Bank Center, 1735 Market Street, Philadelphia, PA. For more information call 610-325-6001 or click onto the CF Foundation Website!

GREAT NEWS! VX-809, a potential CF drug developed by Vertex Pharmaceuticals, showed encouraging results in a preliminary Phase 2a clinical trial. VX-809 is one of the first investigational drugs aimed at treating the underlying causes of CF. For more info on this study click on the CFF link!

Pictured is my step-daughter, Jessica, with her cat, Edgar.  Please visit her Memorial page.  If you have an anecdote or special memory about Jess, please let me know.  Pictures also welcome.  I will post them in her photo album. 

Cystic Fibrosis (CF) is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the US.  A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life threatening lung infections; and obstructs the pancrease and stops natural enzymes from helping the body break down and absorb food.  Advances in treating CF have come a long way and life expectancy has climbed into the 30s and 40s.  Good news indeed, but we still need a cure!

For more information on Cystic Fibrosis contact:
delawarevalley.cff.org

» View My Photo Album